Well as I write this I feel a combination of feelings, anger, confusion and bemusement. I like to think I'm a relatively intelligent guy but I discovered today that I had wasted a lot of time and effort trying to help someone who I thought had TCS but who it turned out was lying. I won't go into details I still haven't quite got my head around the whole situation. It is very frustrating when you try to do something nice only for it to turn out to have been a complete waste of time.
That said I won't let it discourage me from helping people in the future but obviously I will be a bit more cynical the next time somebody gets in contact with me especially via Facebook...
I have a email address specifically for my blog, feel free to contact me with any questions, queries or comments:
jab_tcsblog@hotmail.co.uk
I also run a facebook group JUST for people who have Treacher Collins Syndrome so if you have TCS feel free to join it:
https://www.facebook.com/groups/168099453326386/
If you do not have TCS you can join one of the other many groups on Facebook, I've listed the main ones below:
https://www.facebook.com/groups/TreacherCollinsSyndrome/?ref=browser
https://www.facebook.com/groups/TCSUK/?ref=browser
https://www.facebook.com/groups/2419901287/?ref=browser
Hope this helps somebody, thanks for reading.
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